Dear friends and colleagues,
We are very enthusiastic to organize with you the very first World Congress on Rare Skin Diseases in Paris from 7 to 9 June 2022. We count on you to bring your knowledge, experience and originality! We will get together the medical teams, scientists, patient representatives, policy makers, as well as industrial actors. Our common goal is to boost the collaboration between specialists from different centers and countries and to increase research and clinical trials in order to improve patients care and quality of life. In addition, we want to involve more and more the younger generation in the management of rare skin disorders.
The program is articulated around:
- 4 plenary sessions discussing on multidisciplinary management of rare disorders, clinical trials, orphan drugs, active research, and rising stars
- 28 parallel workshops on the various diseases and topics, (genodermatoses, complex vascular anomalies, auto-immune bullous diseases, autoinflammatory disease, hidradenitis suppurativa, neurofibromatosis, severe cutaneous drug reactions, rare skin cancers, hair abnormalities, pigmentation disorders, puzzling histological cases, social aspects of rare skin diseases, etc.)
- 1 poster session (there will be a call for posters)
- 2 training sessions: “Juniors challenge Seniors!” and a dedicated training session for French speaking countries (“Formation à partir de cas cliniques”).
We are counting on you to join and share this new adventure to improve patient care. Join us for 3 days to share the dynamism and commitment of the scientific community and to move forward together. We hope that many of you will be able to attend! See you in Paris!
Christine Bodemer, ERN-Skin coordinator
Maya El-Hachem, President of the Rare Skin Diseases Network of the Fondation René Touraine